Archive for the ‘Uncategorized’ Category

S.Clay Coming Home This Week

Wednesday, April 10th, 2019
Weirdos in the hospital!

Weirdos in the hospital!

It’s been a harrowing 2 1/2 weeks. One in the ICU, where it took everything to convince the rude doctor to even TRY to bother saving his life. He didn’t want to send a probe into his stomach to find out why he bled in there. After only two days, he strolled in and said “We shouldn’t even put in a feeding tube. He’s DYING, so why prolong the inevitable?”

He said that in front of Wilson, who understands what is said. I was FURIOUS.

And to ME, with no gentility nor preparation. I told him it’s not a conversation in which Wilson can participate, since he can’t speak. We will NOT scare him like that!

I fought for him every day in that unit, where many mistakes took place…..then went home and collapsed.

IMG_6186 IMG_6189

 

Before he was moved upstairs, out of the ICU, he had the probe performed. He has an eroding esophagus, and of course, terrible lung congestion which they suctioned. It’s considerably better but not perfect. They removed the feeding tube, and he’s eating bland puréed food & thickened water. He has some dangerous swallowing issues, but we hope to move on to finely chopped food soon.

But we have been LAUGHING a lot! Yesterday Rena showered him in the deluxe bathroom in his room. I trimmed his 2-week whisker buildup, then shaved him. He looks beautiful, and was so happy with all the attention he was positively beaming. He looked at Rena so adoringly while she dried his hair we both laughed…”He’s NEVER looked at me like that” she said, acting annoyed but secretly pleased. It bordered on the bizarre, actually. He was virtually SWOONING, looking up at her, while I took pictures. I’ll post them just as soon as I figure out how to use the new phone.

This afternoon, at around 1 o’clock, I happened to ask when they planned to discharge him.

“Oh…in about 45 minutes” said the Case Manager.

WHAT? I was home, doing a few things before going to the hospital. They’d have driven past me! We need a new hospital bed, groceries, and some extra organizing…like removing the beds we’ve got in there, and rearranging things! Another nightmare. Now I’m hoping he’ll be discharged on Thursday morning, and we’ll be ready. But I won’t know til later in the morning.

Wish us luck! It’s going to be challenging to lift Wilson in a sling, and swing him into a chair…then back again. He is extremely frail now, but with the right equipment I’m hoping for the best. I look forward to having him back home…where love resides. I’ve gone to check on him in the night many times, forgetting he’s in the hospital.

I miss having him here at home so much.

P.S. The photos are from yesterday. Wilson is in the book (and on the cover) by Jon B. Cooke. Other artists included have been taking selfies with the book, and posting them on Cooke’s Facebook page. I wanted to have Wilson join in this tradition, even though he’s in a hospital gown! The one wearing shades looked a bit too “Weekend at Bernie’s”, so I’ve added ones that show his beautiful Baby Blues.

Wilson in ICU

Monday, March 25th, 2019
Facebook post

Facebook post

i hope you can read this! I’m rushing to the hospital and don’t have time to write this all over again. I will post again tonight. Hoping for the best.

Chrissie Hynde is Badass!

Tuesday, February 12th, 2019
Checkered Demon Ring

Checkered Demon Ring

The late Chris Van Laer made Wilson & me Checkered Demon rings, as a gift.. He started by surprising me with this one, which proved to be too small. He made two more, with the 3rd one perfectly sized with a little bigger face. Wilson’s much bigger one came out perfect on the first try.  I knew immediately I wanted to give this to our beautiful friend, Chrissie Hynde. She’s been wild about Wilson for decades, and always gets in touch whenever she plays in San Francisco. And crazy about Wilson’s art since the beginning. I hoped she would like this very special gift, and was thrilled when she finally received it and got in touch. Last year she sent a photo of just her hand, which I posted at the time. But this photo is really great! Thank you, Chrissie, for posting this gorgeous photo of yourself, wearing the Checkered Demon ring! Wilson couldn’t stop looking at it, taking this iPad out of my hands so he could look at your beautiful face. You are so badass! And we both love you.

The Checkered Demon Pays a Visit

Wednesday, January 16th, 2019
Checkered Demon

Checkered Demon

Wilson received this lovely shirt from Ed Tharp a few weeks ago. What a terrific surprise! Now, of course, the world of Facebook is clammoring for them, but since Ed is not in this business, the two extra he made are not for sale. You’ll just have to gaze at it from afar,in appreciation. It’s pretty fabulous!

Xmas … a Holly-Jolly message…

Wednesday, December 26th, 2018

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I Have Cancelled the P.O. Box!

Friday, December 14th, 2018
Cute Note

Cute Note

I have stopped using the P.O. Box. We almost never receive any mail there, and the price of it has skyrocketed. It’s just such a waste of money that I can no longer justify keeping it. We receive only a fraction of its cost over the year, so it’s ridiculously wasteful to keep paying for it.

If you need to mail something to us, simply contact us by leaving a message here, or message me (Lorraine Belcher Chamberlain) on Facebook and I’ll give another address.

Thanks to all!

Posing without costume

Wednesday, November 21st, 2018
No makeup

No makeup

I feel the need to post the photo Rena took of me on Halloween, just after taking some of her. We couldn’t retrieve Wilson to join me, as it’s become increasingly difficult to get him down the 5 steps from porch to sidewalk without the help of a BigStrongMan. There aren’t any handy at a moment’s notice, it turns out. We must both put on back braces, then coax & pull & cajole, beg, nag & threaten as we hold him up while making the descent. He is ornery & uncooperative at such times…revealing no loss of these qualities from earlier years, before his injury. So I stood there solo, while Rena snapped a photo.

I looked a bit WAN that day. It was much quicker to draw lips and shades with lashes on this picture than run back inside & apply them in reality. Better than photoshop…which I don’t know how to do, and so much more efficient!  Boo! With neon lips. I took the cat down, finally, only yesterday. We’re close to Thanksgiving, after all! Time to re-decorate. More to follow, with His Majesty, in coming days. Hoping for rain tonight, and cleaner air tomorrow.

B O O ! to YOU! 2018

Wednesday, October 31st, 2018
Halloween Honeys

Halloween Honeys

I’ve never hung up the cat&mouse ON HALLOWEEN in the ten years since Wilson was injured…until TODAY! I just couldn’t seem to do it, in light of this day having been the anniversary of the last day Wilson was fully himself. Ten years ago HE had hung up the cat himself…for the last time. He had just finished a drawing for Kevin Webster’s birthday surprise, and we took it to Folsom Street to have Kathleen scan it. Wilson was wearing his brand new wolf mask all the way there, window down, sticking his head out at frightened children in the Mission. It had already been been a really happy morning together, and I was enjoying his glee…about being finished with the drawing on schedule, and it being one of his favorite holidaze. We were in great spirits. The following day, November 1, 2008 he was injured, and our worlds changed forever.

Rena

Rena

Today, Wilson’s caregiver, Rena, dressed up as a baby in order to embarrass her 9-year-old son at his school Halloween party. I loaned her Wilson’s striped sock monkey, and my fuzzy slippers. I think she will succeed in her perverse goal even without a giant pacifier hanging around her neck! She is a very funny woman, with a delightfully sick sense of humor.

Kitty pumpkin

Kitty pumpkin

The kitty pumpkin was from Doug&Heather, our upstairs neighbors.

with the dead cat, and the graffiti garbage can which is now a work of art, I believe our Halloween presentation is complete.

HAPPY HALLOWEEN!

Talk like a pirate day!

Wednesday, September 19th, 2018
Shirt by Rick Veitch

Shirt by Rick Veitch

Captain Pissgums & his crew

Captain Pissgums & his crew

Hi kids! Rick Veitch sent some t-shirts to Wilson, and this is my favorite. It just makes me laugh, and the color is great. Wilson and I will just have to share it, after fighting over it. (Not really)

I get to wear it next time!

its TALK LIKE A PIRATE DAY today, so here’s a Pirate Drawing for you, as well.

Belated Birthday Party w/Cake

Wednesday, August 1st, 2018
Shakey Cake

Shakey Cake

On Saturday, I made a lemon cake and attempted to write “Wilson 77″ on it with a faulty, clogged tube of green frosting. (I know, it’s a lousy worker who blames his tools…but seriously! It wouldn’t come out smoothly. Drips & blobs only!) I added Peter Pan, Pink Flamingoes, seven striped candles, and festooned with a teensy strand of mini lights, I placed it on the rolling hospital tray and steered it down the long hallway to the living room, where three of Wilson’s pals and our caregiver, Rena, waited with the Guest of Honor.

Baker/decorator

Baker/decorator

Bill & Eugene

Bill & Eugene

Rick London, Eugene McCarthy, and Bill Carlson brought a smile to Wilson’s usually very serious face. He was thrilled to be the center of attention, and to listen to his old friends do all the talking.

Rick London

Rick London

Rena lit the candles, I reminded him to make a wish, then managed to blow out the candles for him without lighting my hair on fire.

Making a wish...

Making a wish…

Rick jumped up to assist, as Wilson has recently found it confusing to use utensils. We must feed him unless it’s apple slices or sections of a sandwich. If he tries, he will often turn it upside down on the way to his mouth, dumping its contents onto his shirt, or into his lap.

A little help from a friend

A little help from a friend

It was sweet to witness this act of kindness. And it gave Rena and I a break for a change! Rena sat protectively nearby, but got to relax from such duties, and have some cake as well.

Rena, Mother Hen..

Rena, Mother Hen..

Thanks for coming over, boys! It was only after looking at my photos that I realized I forgot to invite some gorgeous babes for Wilson to look at. I’m a terrible wife! I’ll try to do something about that, next year. And maybe go back to ordering a professionally decorated cake. Although it really was fun doing it myself, no matter the outcome.

It was a happy afternoon, and Wilson kept on smiling well into the evening. I’m so glad he was born, and thrilled he is still alive so we can celebrate it!  He can’t speak any more, but says volumes with the expression in his eyes. He’s still very much present. And I love being in his company, even though now I must put words in his mouth. Believe me…when I’m wrong, he says “NO”! with profound conviction.

His Majesty

His Majesty

It was a good day.

Thanks for all the birthday greetings, and generous donations to            his Special Needs Trust! We are most grateful for them all.